October 2013

S M T W T F S
  12345
6789101112
1314 151617 1819
202122 23242526
2728293031  

Syndicate

RSS Atom

Most Popular Tags

Expand Cut Tags

No cut tags
fullygoldy: text = Put your bitchface on (Bitchface)
This week is already sucking beyond the telling. And most of the telling is way TMI. Suffice to say, DH has been back to the urology clinic 2 days in a row due to complications, and now he's attempting to fall asleep in bed with a new catheter/bag setup that is supposed to stay in until Monday (6 days). When he came home from the initial surgery, he only tolerated that one for 3.5 days. He's already so uncomfortable (for reasons) that I can't imagine this going well.

Also, he's got 2 new meds, and a proposed treatment plan for a 6-wk course of chemo that he can't undertake until he is fully healed from the previous surgery, and at least 3 follow up appointments next week.

In other news, the boy is attempting to buy a new-to-him car. He needs a co-signer of course, which, I guess I'm okay with, seeing as we co-signed for the girl's school loan.

And one truly good thing:
The girl had her 20 week ultrasound last week, and ta-da! Grandbaby is a boy! He's already tall, thanks to daddy, and everything looks good.

Can It Be 2014 Now?

Saturday, August 3rd, 2013 03:54 pm
fullygoldy: Yellow Roses (Default)
The good news:
The girl is pregnant and due January 31, 2014. She hasn't had too many icky symptoms, and the first ultrasound (they do them at 10 wks now!) looked good. She and the baby-daddy have committed to parenting together, but they so far haven't decided they *must* marry, so I have hope that their eyes are as open as they claim. DH says we'll shorten "Grandma Goldy" to GG. :)

The bad news:
DH had a systoscopy on Thursday. They scoped his bladder, and the way they get in there isn't fun. There's a growth on the bladder wall which will be removed surgically on the 20th. He's scheduled to be admitted for 24 hrs "given his history." These "cancerous" growths come in two flavors, we're told. It could be sitting on top of the bladder wall, and the removal/biopsy process will completely eradicate it, OR it could be embedded and require further treatment. I spent the first 4 mos of this year helping him recover from cancer #2. I am SO not looking forward to spending the last four doing the same thing.

So, I've got a list of potential therapists for me, since I seriously need someone to rant to (and did so before this lovely discovery), and I'm staying flexible for our Labor Day camping trip (remote camping, paddle the canoe across the lake to get there stuff), because either he won't be up for it, or he will, but he won't be able to do any lifting or paddling. I'm cancelling our plans to go to Paso Robles in Oct. Even if the body is willing, the checkbook won't be. The next two weekends have fun stuff planned, so I'm going to try to focus on that and not start worrying about the surgery until the 19th. This weekend I'm reading an embarrassing amount of Teen Wolf fic. Go me.
fullygoldy: Yellow Roses (Default)

This week has been exceedingly hard for me emotionally. I'm going to cut-tag for length, but I'm not going to apologize for content.  

This is what being a woman looks like right now. )*discussion of rape, sex, double standards and the standard things that might make you scream if you're female, an ally or you know, human.
fullygoldy: Yellow Roses (Default)


They do this thing where I work called a PIP (see title), so if you're not performing well, instead of firing you, they demoralize you first with the pretty much impossible PIP process, but it gives you time to look elsewhere before being let go.  Most people see the writing on the wall and bail before they have documented proof the PIP failed.

2013!! Why have you not found employment elsewhere?!?!

 

ER visit the first )


 

Bad Carma )


 

Local Warming?  )

 

ER visit the 2nd )

 

Subaruby is a sad panda )

 

ION )

It appears we've hit our out-of pocket max of medical expenses for the whole year in the first quarter.  Yay? Now I am eating steamed dumplings and drinking vodka.  If I had a hottub or a bath deep enough, I might actually not feel like whining.
 

Cancer Sucks (Redux)

Saturday, March 9th, 2013 10:07 am
fullygoldy: text = Put your bitchface on (Bitchface)
Crap.  A very dear friend to DH is going into hospice.  She was diagnosed with breast cancer around the time he was diagnosed with MDS.  Her recovery was longer and more arduous than DH's.  And then, when she was ~5 yrs out and expecting to be pronounced cured, another kind appeared.  She's decided to stop chemo since she can't even take any nourishment by mouth now. 

I'm so mad.  And terrified.  DH is doing better, finally, from his throat cancer "cure."  Yes, it's gone, but the aftermath of the surgery has been hell these past 8 weeks.  In the past three days he was able to eat stuff that wasn't entirely liquid once or twice per day, and sleep more hours in a row at night than in the day, awaking pretty refreshed and encouraged.  It's still hard getting 1500 cals per day into him, and he's lost 30 pounds since Jan 11 (We now weigh almost the same - scary and weird).

The thing is, if we ever had to face the hospice decision - I don't think I could do it.  Maybe for me, I could, but I'm terrified that if it ever comes to that for DH, I'll be too selfish and adamant to let him go.  I'll fight and fight, and badger him to keep fighting, and refuse to let him talk about the things you need to talk about while on that last part of the path.  I don't think I'm ever going to willingly let go. For all my hard-won zen/non-attachment attitude to the rest of life, his death by cancer is just the one thing I'm going to refuse to accept.

Dammit.  I hate this.
fullygoldy: text = Put your bitchface on (Bitchface)
 Shiny new year, shiny new drama.  Can it be 2014 now?

The DH, he is not better.  In fact, multiple side effects, slow healing, rapid weight loss (due to limited liquid diet), and lack of sleep have conspired to wear him to a nub.  I'm still a knob, but I'm sure I'll lose the K by morning.

The girl, her luck is atrocious.  Shiny "new" dream car, turns out to be a lemon.  Stranded on the road 3 times since it was purchased Jan 9.  Same problem all 3 times.  Mechanic is completely stumped.  Also, the engagement, it is over.  She's returning the ring tonight. (I'm not actually surprised, and had to resist mightily telling the guy that if someone's heart was to be broken, it would be *his* back when he was announcing his intentions. I'd feel bad for him if he wasn't a card-carrying, gun-totin' Republican. What was he *thinking*?! It's as bad as when Dharma met Greg.)

I cannot focus enough on work, but am v. v. thankful that no one has called me on it yet.  I need to call my sister and find out the details about her latest drama (she suddenly has "custody" of her ex-husband's *mother*, who has Alzheimer's and has been demonstrably neglected by her only son since she became a widow) but I don't have the spoons for it.

The boy, well, he got a job finally, and is liking it, and is optimistic about moving forward (so is the girl), but his pig-headed husky puppy ran away tonight.

If anyone feels compelled to write a song about my life right now, I will probably learn voodoo just to get even.

Wake

Sunday, January 27th, 2013 11:15 am
fullygoldy: McClane & Matt in profile (Live Free or Die Hard)
I'm on my way to a wake for a dear friend of DH's.  He had an incurable form of MDS, the original thing DH had, but was thankfully cured of.  Bill contracted pneumonia last week and was gone within 2 days.  He had the most amazing outlook, he was super sweet, and fun to talk to, and he and DH bonded over their mutual experiences. They were each other's cheerleaders. 

This particular wake is being held in the favorite local watering hole, where most of us met Bill.  Any Friday he was able, he'd be there visiting, catching up, sharing a pint.  The normal thing one does whilst living your life.   DH had been really upset he couldn't go to the bar on Friday to show Bill how well he was recovering from his latest surgery, and hear about how the latest experimental drug was working.  Then we found out yesterday that Bill wouldn't have been there anyway.

Unfortunately, I'm afraid the wake will also be a sort of gauntlet for us, and I'm betting I'll be able to put together a bingo card when I get back.  It's half constructed in my head already, and I've got a feeling I'm likely to go off on one or two people whom I already KNOW will say something so wildly inappropriate that the only reasonable response will be screaming in their faces.  So I'm not really off to a good start.  Also, I haven't had any alcohol since Thursday, due to a mystery bug that hit me Friday. I'm not sure if it would be better to stay sober(ish) or tie one on if things get wonky.

Cancer Sucks

Saturday, December 15th, 2012 10:38 am
fullygoldy: text = Put your bitchface on (Bitchface)
Sorry to interrupt the usual schedule of squee, but I just have to say this.

I've had my share of this point being reinforced (sometimes brutally) over the past 6 years. I'm over it, and so are my friends and my DH.  Cancer can just go fuck off this planet, right the hell now.

If only the universe worked this way - we could all just agree to tell cancer to fuck off, and it would.  I'd like that an awful lot.  Because then we could get rid of a lot of other things too.  And you know what, I actually believe that it could work this way.  Maybe not for cancer, but for war and violence and hate in all its forms - if we all agreed at the same time to end them?  That would be that.  Call me a dreamer, but maybe some day we'll grow up enough to make it so.

Today is not that day.  Today is the day of my big, fancy birthday party, being co-hosted with a girlfriend who is the same age (we're 6 days apart).  We've been looking forward to it for a whole year.  We have compatible outfits - kinda like back in high school when you were going on a double date and you asked your BFF if she was going to wear her baggy jeans and hawaiian shirt too...  I'll post pics.  We got tiaras especially for the occasion.  And helium balloons.  It will be fun.

But today is also the day that the ENT called the house at 8 am to deliver the biopsy report to DH.  That infected tonsil he's been battling for the past couple months - well, that's some type of throat cancer.  We won't know if it's the easier type or the aggressive type until after the next rounds of testing, which are being scheduled asap.  So, yeah. That happened. After 6 years of bone marrow transplant recovery, I'm pretty pissed off about this development.

And today is the day of my cousin's wedding - which I'm not able to attend, it being in Boise, and scheduled for the same day as my party.  I hate missing the big family events, but that's what happens when you decide to live in a city so far away from anyone you're related to.  My sister is there so that's something.

And today is the day after Newtown, CT.  My daughter teaches in a daycare.  She came home really upset, and I bet she stays that way for awhile.  I had to hold her and hug her for a long time.  And I also have to say, I love my President.  That he felt this loss as acutely as the rest of us was evident. That he wasn't ashamed to show how he felt was priceless.

Today is another lesson in the interconnectedness of the universe.  Some of these lessons are harder than others.
fullygoldy: McKay's got a Headache (Stay In Bed)
I haven't had a classic Monday like this in forever.  And I nearly missed out on Talk Like a Pirate Day, ARRRGH!

First off, last night I remembered to put my phone on the charger for today.  Good thing mateys, since the phone had drained down completely and shut itself off.  This morning, I'm getting ready to leave, so I collect my phone and go to turn it on. Only it won't.  I play with it a bit to no avail, then decide later to take the battery out.  The water detection spot on the end is bright pink! I don't even know when this could have happened - really anytime in the past 6 wks since the last time I looked at it.  You'd think the water event would line up with the phone-not-working event, but I know for a fact that the phone worked fine through Friday, and did not leave the safety of my purse all day Sat & Sun.  I stuck it all back together for safe keeping, and Lo, the phone, it is alive. (Imma request a replacement though, too many weird phone probs this summer).

Second, I got to work and spent the morning online, catching up on administrative "year end" stuff (it's our FYE this month).  After lunch, I notice I'm having trouble with my internet connection.  I figure it's my POS VPN connection.  But no, restarting that is a no-go. Then I realize my Cricket connection has dropped.  No biggie, just reconnect. Only it WON'T.  Keeps saying "cannot connect to network." Sure enough, the little light on the device is red, not blue.  Keep trying for about half an hour, to no avail.  Decide I'll go home to finish up some stuff.  Leave a note for the guy coming in at 3, and head out.

Third (as in three strikes, you're outta here), I get home to the great surprise and delight of DH.  I relate my woes. I say, "so I came home to get back online."  He laughs at me. "Nope, not gonna happen."
Me: Why not?
Him:  Power is out in the neighborhood.  Fire Dept and Electric Co trucks are in the neighborhood.
Me:  ....
Me:  You wanna take the dogs for a walk?

After the walk, the power is restored, but my desire to do anything productive is seriously eroded. I straightened up my office (which I haven't actually inhabited in over a year).  I've still got to put the clean sheets on the guest bed, and clean up a doggie stain in the corner (it requires more attention than the 18-yr old gave it), and there's a boat load of filing of both personal and work-related stuff.  But the desk is clean, there's room for yoga, and I'm looking forward to moving back in at the end of the month.  Just, I'm not in the mood to actually work in here today.

And yay! Just like that, Monday is officially OVAH!! (It's 5:00 where I am, sorry if it's not for you).  DH just left for his first of 10 mandolin lessons, and now is officially the time I have set aside for more-intense-than-usual yoga workouts for the next 10 Mondays. I've got at least 1.5 hrs, maybe by the end of the run, I'll actually have the stamina to go that long.
fullygoldy: text = Put your bitchface on (Bitchface)

OK, so I normally don't do the real life stuff in this journal.  Feel free to skip this one.  It's way TMI.

Whine, bitch, grump. Walk on by, friends, nothing to see here. )
It's also much safer to post it here than my RL journal.

RIP Cousin Ken

Sunday, September 16th, 2007 09:48 pm
fullygoldy: Rainbow painted Feathers (Feather Rainbow)
 My cousin (in law) passed away on Friday, after a brief and intense fight with kidney cancer.  He is survived by his wife, Dianna, of 30+ years, 9 children and 3 grandchildren.  I don't remember him very well, because he and my cousin moved their family (only 2-3 kids at the time) to new york before I was out of high school.  What I do remember from back then is that he was kind, gentle, quiet and geeky, but totally able to stand up to the hell-raising (fun-loving) brothers of his new bride.  Many years later, when I was a new mother for the first time, They brought the whole family to visit (6 kids then, plus one in the oven) and camped out in our yard in SC.  

I have a great picture from that visit - I had just arrived home from work, wearing my favorite yellow dress, and was holding a 3-mo old Mavis on my lap.  I'm surrounded by my youngest sister (also departed), a gaggle of cousins, and Ken.  Ken is relaxed and smiling his great, wide smile, and this is my enduring mental picture of him.  Several years after that, they sent me a snapshot of the entire family on the sofa at their place.  Ken and Dianna are in the center, smiling their same great smiles and surrounded by so much love.  My new enduring memory of Ken and Dianna will be that they were always surrounded by so much love.  I know this tragedy will draw their already tight family even closer together, and I'm glad they have each other, even though they'll feel this hole forever.  It's a really sad time for our entire clan.

I really wanted to take my family to the funeral, and had been working on being able to do that, but the end came sooner than any of us had wanted.  Short notice air fare was close to $500 each.  With the visitation on Tues and the funeral on Wed, I'd have to take at least 3 days, if not more off, plus take the kids out of school.  Mavis can't miss that much at this point in time, and I'm just back from taking 2 days off, which would mean losing a full week's wages this month.  So, we debated and discussed and finally decided to stay home.  It didn't feel right to send only one or two of us to attend.  We hope to either visit with them another time, or offer to provide Dianna a trip away from ground zero.  In the meantime, I ordered a really beautiful flower arrangement - not too girly - a foliage covered heart with a cascade of yellow roses down one side, to be delivered to the church on Tues.  We all voted on it this afternoon.  I've got my mom checking into what they might need to get through the week with so many people converging on them - we're thinking a gift card from the local grocery to fill in the gaps between casseroles.    

In the meantime, we've got yet another family member to worry about - my first cousin-once-removed, Frank Jr. informed us last Wed or Thurs that his new wife is in the hospital at 27 weeks, trying to stay pregnant for at least another 7, if possible.  Ashley's water "broke" with an unexplained pinhole, and baby Kyra is just not ready to join the world.  They're in very good hands though, at a highly regarded hospital in NC, so we're all expecting a favorable outcome.  I've got a wonderful picture from my sister's wedding of me standing between Junior and Dianna's oldest, Patrick.  I babysat for both of them before they ever walked and in the pic both are towering over me. I guess the early babysitting explains their attachment to me as a favorite cousin.

So for the week of September 9-15, 2007, we're down one member of my generation and holding out hope for getting to meet the newest member of the clan, 2 generations down the line.

Remember Aaron Hall

Wednesday, June 20th, 2007 08:37 am
fullygoldy: Yellow Roses (Polycon)
I've got no words for this.

I'm truly speechless.

Life isn't Fair

Friday, April 27th, 2007 12:55 pm
fullygoldy: Yellow Roses (Green Eye)
This is for all my friends going through drama this month, this year, this whatever.

If life was fair, then you'd have to believe that you actually deserve the bad things that do happen to you. I don't know that having more obvious rewards in my life would balance out the bad things that I'd deserve.

I know you're having hard times, and feeling like no one understands where you are, or that no one is giving you the support you think you want or need. I'm sorry you're feeling this way, but most of you have been in a similar place at least once before in your lives, and you know that life is cyclical in nature. You know that you'll survive this latest drama (whatever it may be), even though you'd rather not have to do the work it's going to take to get through it. I'd like to think that I'm a supportive and caring friend and that you can rely on me for some important things.

Today, that important thing you need is a slap upside the head. I'm conveying it thusly, because I was the recipient of this reality check myself this week. No matter how bad things are right in this moment, they can always be worse. I'm not talking about "dying in Afghanistan" worse, I'm talking about right here in your neighborhood or city worse.

You could be a woman who spent a year trying to conceive a child, who finally succeeded at christmas time, with the help of a fertility specialist, and be totally delighted. You could have found out that not one, but three embryos "took" and you would soon be the parent of three, and be totally shocked. In the intervening months, you could have come to realize that your husband didn't actually want any babies (and maybe doesn't want to be married either), and be contemplating single motherhood with triplets, and be completely surprised and frantic. And this week, at only 21 weeks along, you could have gone into labor, delivered all three, and held them while they passed away within hours of their birth, convinced that they were your last chance at fulfilling a life-long dream.

RIP Antonia, Lucille and George.

We all have our crosses to bear, and I've found that this is true: many hands do lighten the load. Let's all make sure we're reaching out to each other, no matter what our own loads weigh. It's the only way we're going to survive this so-called life.

Drive By Post

Sunday, March 25th, 2007 10:10 pm
fullygoldy: Yellow Roses (Default)
  • Mavis's wonderful adventures in MLW.
  • Wicked - the audiobook (unabridged) - what a weird-ass book.
  • Found!  Luzon Jumilla back on the shelves at Woodmans!
  • It's not Pneumonia, but it still required 2 trips to the Dr. this week.
  • The care and feeding of a 14-yr old vegetarian.
  • Hot showers, Yay!
  • The new PM, the new project, and loads of work to do.
  • Kitschy salt & pepper set (photo)
  • Crocuses!

 

Whine

Sunday, March 18th, 2007 02:09 pm
fullygoldy: Fork you (Fork you)
I haven't had the emotional energy to post much lately, mainly because most of what I've been thinking about posting has been a long string of whining.  Or whinging, if you're on the other side of the ocean.




No, it will take too long.  Let me sum up:  I think I need to get laid.  Preferably in a tropical paradise.
At least tonight they'll be giving us the 2007 Dream Home in CO ::g::  Well, if they know what's good for them, they'll be awarding it to us.
fullygoldy: Fork you (Fork you)
I have just learned that thanks to the latest incarnation of HIPPA, none of my family's health care providers will perform "family billing" this year.  That means that each provider sends out a bill for each patient, each and every month.


That amounts to 10 individual invoices each month, thank you very little.

For this bounty of medical care, I am already committed to paying a minimum of $600/month, so yep, luxury car payment.  It's a good thing we only have one car payment and fairly reliable vehicles, non?  Add on top of my payment plan, $290/week (yes, I mean WEEK) for health insurance premiums.  For a policy that has NO in-network providers or hospitals in our area.  Which means every service we receive in 2007 will be covered at 55% max, after our deductibles.  Our maximum out-of-pocket it $4000/person or $12000 family.  DH will max out in the first 3-4 months, probably.  So - imported luxury car payment, here we come. Oh joy, unconfined.

LJ is being a pill

Tuesday, October 10th, 2006 08:32 am
fullygoldy: Fork you (Fork you)
Don't know why I couldn't get my font to work on the previous post.  LJ offered to clean up my Word text several times, but failed to do so each time I clicked "OK."  I was going to post last night, but it was more trouble than it was worth.  I think of myself as a fairly savvy computer user, but I have more trouble with LJ than anyone else, I think.  Yesterday, I couldn't add in pictures to my pint_of_cheer posts either.  ::sigh::

G #4 - Gobsmacked

Saturday, June 3rd, 2006 05:01 pm
fullygoldy: Yellow Roses (Sheppard)
This was a long, hard week.  Whoever decided Mondays should be national holidays should be revived from the dead and then shot.  A Monday holiday means that Tuesday is both Monday and Tuesday of the holiday week.  Mondays are generally bad days, because you're not ready to come back from the weekend, but Tuesdays tend to be very bad days for me right now, because that's the day the architect's rep visits my job.  This past Tuesday was long and hard.  And not in the good way.

Wednesday, I made it home just in time to change clothes and pack up my sandwich to take in the car.  The boy had baseball practice and the girl had the annual cheerleader meeting where we write the check for all her clinics and uniform stuff.  ($231 this year, less than usual, but also includes TWO pair of shoes).  On the way out of the neighborhood, the boy asks, "what's up at the N's?"  
"What do you mean?" 
"when I came home from school, there were cop cars in the driveway and caution tape around the yard."
We had no idea what that was about, but it just can't be *good.*  But there was no evidence of the goings on at 6:00 pm.  I wondered about the possibility of domestic violence, but in 7 years in this neighborhood, had never had reason to think that before about these neighbors.  After the meeting and the practice and filling the gas tank, I was too pooped to post, and ended up going to bed at 9:30. 

Thursday was a really tough day.  Things had not turned around on the job site, I really had no clue when or how we were going to achieve substantial completion, only knew that it would in no way be Friday, June 2.  Lost two hours of my life to my supervisor, who was uselessly going over and over the project and how we ended up in the mess we're in.  I kept telling myself to breathe and not be defensive.  I inherited this mess, I didn't cause it.  I've done everything possible to pull out a save, but it wasn't meant to be.  When I finally headed home with Meatloaf blasting out the speakers, i was pretty darn proud of how I'd handled myself for those 2 hours.  But damn, I wanted a martini or two.  And I was looking forward to a very thorough fucking in the very near future. ::g::
I arrived home and *demanded* my hugs from everyone.  When Mavis finally let go, she said, "we have sad news."
"What?"
"Randy killed himself yesterday."
"Randy? Randy N?"
"Yes.  The house was for sale, they were getting a divorce.  He had a driniking problem."
O.M.G.  I lost it.  All day I had managed not to cry over something I had no control over, but hearing this was the limit.  I had had a conversation with a library board member just before coming home, wherin I was expounding on my philosophy of trying to stay on the bright side.  My life could always be worse than it is.  My ace in the hole is that I could be living in Afghanistan or Iraq right now.  So.  My life could always be worse.  But oh my god, there is no way my life is worse than Jenny and Jessie's.  They've just lost their dad.  They're 13 & 10.  Jenny & Randy were inseperable.  He shot himself in the head in the home he built for them.  What a horribly selfish thing he's done.
For the rest of the night, just about any time I openend my mouth to speak, I wound up crying.  It was a 3 martini night, and again I went to bed at 9:30.  Gobsmacked is the perfectly apt descriptor for Thursday.

Friday was long again, and I didn't even get away from the site to accompany DH to his doctor appointment.  His levels were low, as he expected, requiring transfusion again, but they decided it would be better to wait until today, so he could get up on 6 East, where the staff is a little more knowledgeable about his condition, and more able to poke him without truly hurting him.  The kids were doing their own thing for the evening, so we went to the Dane for dinner and a couple of beers.  By the time we got home, I was pretty much down for the count again, and talked DH into yet another early bedtime.  Unfortunately, neither one of us slept well or long.  On an up note, we did manage to get the building to the point it needed to be at for the shelving delivery on Saturday,a nd the beginning of the move-in on Monday.  But we won't be truly *done* until June 22 (almost 3 weeks later than the target).

I was not really ready to get up this morning, but DH wanted to cruise the Farmer's Market before checking into the hospital.  It was an absolutely beautiful morning,a nd I enjoyed the circuit, but after I left him with the first pint running in, I went home for a sandwich and a nap.  He checked in around 9 and was about ready to go at 2:30.  Much better than the last couple of times in the north tower.  We've rented some DVDs, and I'm doing a chinese-inspired menu for dinner.  Tomorrow we'll have to get groceries and finish up some house cleaning.  But it is also the state park open house, and it might be nice to really get out for the day.